What do you do when doctors know everything and don’t hear you?
Nathan’s dialysis still isn’t going great. They made an adjustment at the beginning of the week and it seems to be making matters worse instead of better. His UF is lower and he’s retaining more fluid. He went in to tell them today and he was blown off. They told him to come back Monday and they would evaluate then.
His best UF drain before their last adjustment was 1800 mL. Now even with the adjustment it has been 1100 or less. He’s retaining more in his legs and his belly is constantly bloated. The hernia that they failed to fix in the port surgery is now constantly distended. I’m exasperated and exhausted and feel like my husband is headed towards dieing because of blazé dialysis staff.
I’m documenting here just in case. I will sue if they fail at their jobs. I’m not spending 11 years taking care of him to be denied any help or assistance, and then loose him to stupid lazy people that ignore when the patient says something is wrong.
May you never experience what it feels like to be ignored by medical staff. May you know that those you deal with are doing their best to help. May you never be fearful of losing a spouse. May you know answers well come in time. May you know that things always work out okay. May you know that the divine loves and supports you in all that you do.