How do you choose?

I’m mulling over my decisions this week, somewhat agonizing over my choices.

The one that started it was my decision to deal with a dead tree and insects threatening my home. I could have not done that, and gotten Nathan and I both, the IV treatments. But doing the tree means one of us has to sit and wait longer. I chose myself to wait.

My reasoning was complex. First, I really value my own health, and really, really want to heal all the way. If you don’t have your health, then you don’t have much. Plus, the rule used in airline safety definitely applies elsewhere: “Take care of yourself first, so you can stay alive to help others/children.” It’s super important to be able to stay alive and be helpful to others, it’s our duty in living all of life in it’s entirety, not just for emergencies. It is how we give love back to the divine.

Yet at the same time, I know I have worked like crazy on my health. I may not have healed fully, but I have shown some improvement. My face/skin is consistently clear, I have fewer allergy symptoms across the board, and my body is fitting well in smaller clothes now. It may not be congratulations worthy, but my improvement tells me that I am already headed towards healing, and waiting longer for a treatment isn’t going to kill me. It’s merely annoying and frustrating.

I’m more upset that I can’t manage the whole family being treated all at once. I’m concerned that if I only do part of the family, then there is risk of reinfection/repopulating the virus(es). I may get one or two of us better and it not last long enough to get the rest of us better. In which case treatment was a waste of money, which is still unfortunately scarce in my world- I just wish money were more abundant for me/us.

But my home is also really, really important. It keeps, not just me safe, it keeps a whole family of 5 people safe. It is the refuge for my husband and kids. It keeps all our pets safe too. It is where we share meals and entertainment and LOVE. I have worked so damn hard just to get a truly safe home, that the idea of anything harming that, feels like a personal attack. I know it’s not, but I simply am not okay with going backwards because I didn’t pay for a tree to get cut down.

So I definitely leaned towards tree first and then maybe a treatment.

Yet, then I was literally on the fence about whether or not to treat Nathan or sit on what was left until there was more to add to it. I really would prefer to do the whole family at once, it’s safer and more reliable that way. We would be more likely to have long-term positive results for all of us.

Besides, there is no one of us that is more deserving than another. We are all doing our best. I was infected as a child, I was just being a kid, I never deserved the damage it did, or the decades of heartache, misdiagnosis, and problems. And I was already doing my best to get better when my kids caught it. They had no say, no decision in that, they didn’t deserve it any more than I did. And Nathan, I may have given it to him not long after I met him, regardless he definitely has it now, and I didn’t want to give him anything bad. I love him and have since I met him. I want good things for him, and have spent 11 years doing my best to help him get healthier too. We’ve done everything that came our way, we’ve changed diets and exercised and taken gaggles of supplements, vitamins and minerals. We’ve even gradually gotten better at managing stress in our lives and meditating. None of us deserves more than another, and none of us deserved to catch the damn virus. But, Nathan is not doing well, he is the farthest from health. The rest of us have a fighting chance all on our own, and he’s just trying not to drown already.

I really am worried about him, and I know worry doesn’t help, so I’m doing my best not to think about it. It’s just so damn difficult when, you are told that the only person in your adult life to show true unconditional love, is doing worse health-wise, and it is likely because of a virus or two that you gave them.

I caught Epstein-Barr as a kid, but I caught mystery-virus (aka covid) at work. I brought them both to my family, and I was just trying to be a good girl and do what I was supposed to do. I was trying to help them by doing my job to pay bills, by being a good mom and wife. I just wanted to take care of my family and doing it alone was really hard. I don’t know how to live with that, and I don’t know how to fix it other than try the damned iv treatment.

So, Nathan is going to get treated first to hopefully fix his journey as much as possible and maybe pull him out of the nosedive. The rest of us will happen when it happens, and I’ll keep doing what I’m doing to glean even baby steps of progress for the rest of us.

I just don’t know how to make anything else happen. This I can do. I had really hoped god would help, but after 11 years of doing my best, and to get told the things I heard the last two weeks, it’s pretty obvious it’s not likely.

I’m grateful for the clinic and the help and support I have gotten there and from all my co-staff. It is helping me keep my shreds of sanity. I am grateful that I can work with quiet stillness to help me focus on positives.

I’m grateful that I know how to reach for better and reach for solutions. I’m grateful for my meditation time. I am grateful that I have solved vast portions of my puzzle and that I at least have a worthy goal.

I wish I could do both the tree and all of us getting treatment. I wish the damned viruses hadn’t even affected us to begin with, or that they barely touched us. I wish we were all healthy again and the tree was already solved. I wish I had the loving supportive poly/extended family I have long desired. I wish my life and my efforts mattered to God. I wish my prayers mattered. I wish that I was good enough…

I keep trying and I’ll keep pulling up. “I’m not dead yet!” -Monty Python

There’s always a next step, there’s always something else to do or be done. There’s always the next best possibility, the next best thing. Maybe cannabis-based products will be that answer when I finally have legal access to them, they have healed seizures for little kids, what’s virus damage compared to that?!

There are other topics that came to mind when I chose to write this post (poly-family, my sexuality, desires for love/lovers, etc.), but I think you get the idea with just this one moment.

I seldom glaze over anything, and nearly always over-think everything, wanting the best outcome possible. My heart is often aching to be able to solve a both situation, because I rarely am 100% comfortable with my choice. If I could rewrite my worldview, I would eliminate scarcity and replace it with genuine abundance in all areas. That is usually the mechanism behind my agony and feeling like I must choose something other than both. I want both more often.

May you see the mechanisms hindering your progress. May you understand that there are always reasons for wanting both. May you understand that if you want both it is because both genuinely have meaning for you, sometimes even more than you realize. May you find ways to accommodate both no matter what the situation. May you release worry and find ways to reach for better. May you know you are loved and supported, and God is trying to help, but we’re the ones in our own way. May you see evidence of that love and support all around you.

Om Shanti

Cover photo is from our walk yesterday evening. Below you’ll find pictures from my walk at lunch today, and last night.

Trying to be okay.

I put this song on leaving work today. It is my favorite rendition of the song because it is so epic and has the full orchestral backup. I forgot that I had Spotify on repeat for the playlist I was using for client sessions. Somehow several repeats in, my brain finally acknowledged I had heard it many times, but I didn’t bother to change it. It repeated the entire drive home. It did help me to let go some, and many many tears were shed.

I’m not really okay, but I am doing my best to be okay.

Sunday, my only day off, we went to the Zoo to forget about things for a little while. Katherine pulled the wagon while Ian, Anya and Nathan all rode the ski-lift “Skyfari”. She also tried to kiss and pet the wild kitties through the glass. When the other 3 rejoined us, there was a tussle over who would pull the wagon. Later, I squawked at a penguin after it honked at me, and confused it horribly. It craned it’s head around to look at me as if to say “How do you speak penguin?!” My kids rode the carousel, and we all walked a ton, I had almost 12,000 steps by the time we left the zoo. It was a beautiful day, albeit fairly windy. It was much needed reprieve. There are more pictures to be had, but I can’t get Nathan’s to pull up as usual, so I’ll share a few of the ones I took.

Nathan has a brief extension on dialysis to see if he can reverse kidney function enough to stave off dialysis completely. We have been warned of symptoms necessitating an ER trip. For now he is okay, but I notice all the things that are not as we would prefer. It is frustrating us both.

Our cannabis cards have not been approved yet, and we were warned it could take up to 3 weeks, but I am sincerely hoping that it is sooner. I feel like I am dancing the edge of a mental breakdown, and doing my damndest to stay afloat.

However, thanks to a client and the chiropractors at the clinic, there is a service called “WELLTHY” attempting to help us with things.

They have figured out that we fell through the cracks. Disability took so long to get it to go through, that he will not get a penny of SSDI, he’s too far out from a job that had consistent wages. SSI is also out of the question. I worked my ass off keeping our family afloat and just barely above poverty, so my wages invalidate his ability to draw SSI, a family of 5 has to be under $3,000.00 a month to get anything. The medical bills will not be paid by the government, at least in any way to take them off our plate and get them to quit affecting credit tracking.

“WELLTHY” is helping to make sure that his Medicaid will go through, and is also attempting to find some sort of assistance or grant to eliminate the past medical bills. They are also helping with the paperwork for his student loan. They have also promised to attempt to find medical insurance for me at a rate I can afford (not holding my breath on that one). Finally, they suggested they might be able to make a connection for childcare via charitable organizations. I am hoping it all works out.

As for now, my IV treatment is still out of reach. So even if it would help us all heal, it is not in the cards for the moment. There’s not really enough for one person to get treated with it, let alone our whole family.

I have used our stimulus check to pay bills, and we’re working on getting the mostly dead tree removed from our backyard to help reduce the insects trying to invade our home. Then we will treat for insects to ensure our home stays safe. It is vital at this point that my home stay safe, it’s all I’ve got to show for 11 years of working myself constantly. It’s also a sad reminder that I am still drastically further from my dreams than I would have hoped all my efforts would have amounted to. If I had accomplished even half of what I wanted to by now, we would be in my wonderful concrete dome home that would be nearly impervious to termites and carpenter ants.

BUT, I’m still alive. I’m still breathing. I’m still meditating every night before bed, and frequently in the middle of the day. I’m still doing my best to stay focused on positive thoughts (it’s really really difficult right now). I’m still exercising as much as I am able to fit in. The mountains of paperwork just seem to get higher and higher, more and more, so some of my gaps I would normally use for exercise have disappeared. Yet I am still managing enough exercise to keep some shred of sanity maintained. At night Nathan and I have taken to playing solfeggio frequencies and binaural tones to help with healing goals. I have even resumed doing EFT tapping to try and release the emotional buildup.

I am giving it my level best efforts. Prayers are always welcomed.

May you have your sanity when you need it. May you know you are supported and cared for. May you know it is going to be all right. May you see everything work out for the best and be just fine.

Om Shanti

Mission Driven

They other gentleman at the business meeting at Starbucks was Scott, the owner of MissionDriven Goods.

I learned a lot from their business meeting, and I’m still grateful for the breath of fresh air, brought by the knowing there’s still some good in humanity.

I donated to both of them directly using my tips from my day’s work. Perhaps you might find their products useful in your life and find a way to donate that way.

MissionDrivenGoods.com

May you find faith in humanity and your reason for being in this world. May you find ways to be helpful even when facing your own challenges. May you see a reason for everything.

Om Shanti