Right now I’m taking a short break to wash sheets at the clinic. My brain hurts.
I decided that even though I can’t afford med-school, especially knowing I would argue with teachers frequently, it doesn’t mean I can’t learn what I need to learn, to help Nathan.
He’s struggling again, and needs answers, and I’m determined to make it happen one way or another. So I started with texting his nurse and reading textbooks at my easy access.
At work I have a whole library of medical compendiums at my access thanks to 3 chiropractors, 2 current and one retired. I started there with “Grey’s Anatomy”, not the stupid show. I’m now on to reading all applicable areas of “Medical Physiology”.
I’m certain I stirred up a rats’-nest with the DaVatia clinic, but the first doctor to get a clue and do their job right is spared if evidence does point to any applicable malpractice moments. Hopefully the DaVita doctor will be that saving grace, she seems nice enough.
I have plenty of books to read (see below) and if all else fails I can go down to UMKC and browse their medical library. I will find out what I need to know, one way or another. It’s too bad that I’m having to play Susan Saradon’s part in ‘Lorenzo’s Oil’. That movie was made in 1992 based on a true story from prior, yet here in 2021 there are still moments where the family cares more than the doctors.
So this is the library at work:
If I don’t find my answers there I will navigate UMKC. Somehow I will find answers. I just hope it it on time to prevent worse trouble for Nathan.
May you never have to battle for proper care. May doctors always do their best to help you. May you know that you are being cared for properly. May you have all the resources you need and find a way to make things right. May you fully understand every challenge in front of you and find solutions easily. May you always be heard and understood. Above all may you know that the divine loves and supports you in all that you do.
My husband’s focus on and help of BLM, has attracted himself racist doctors.
They displayed black-man-on-medicaid syndrome.
It doesn’t matter that society has poisoned the entire race for centuries in toxic attitudes, hate campaigns, and even poisoning their water and food supplies. No, all of that hate, only led to disease that has afflicted so many of them that they are now overwhelmed with a race of diseased people. They start turning blind eyes on the details and glazing over moments when those people are trying to tell them something is wrong or symptoms that would help.
It wasn’t until I showed up in scrubs and lost it on them using language they understood. It wasn’t until the educated white woman stood up for her spouse demanding answers and solutions, that they started listening and actually started to fix it. He went from 3 months of failing adequacy to passing it in one week.
That is wrong.
I am just realizing the intensity and weight of this situation.
My husband was being shuffled off as an ignorant black-man-on-medicaid and not worth their time and effort to manage properly.
My husband, my love, my college-educated smart, intelligent husband. My husband already knows what discrimination looks like, he has had that his whole life, and he’s spent decades fighting it and doing his best to prove them otherwise.
But when your life depends on someone else’s technology, medicine, and prescription, it is the last place for discrimination.
And sadly I know he is not alone. He is not the only one going to that clinic. He is not the only one being given that treatment.
It is wrong.
But if I fight this matter I worry that I will attract more of it, both literally and figuratively.
You simply get what you focus on. My husband’s only mistake was the focus given to fighting discrimination. His focus should have been on equal rights and equal treatment. His focus should have been on total equality, fair, equal, balanced, equality for all. They wrongs are done and past, and we all need equality in every aspect of out lives. But we’ll never get to the equality ground if we keep focusing so intently on what still happens too often.
Luckily, when I had my meltdown, it was with one person that had actually cared for a family member of hers, on dialysis. I realize now the turning moment was when, I was crying talking about having to call an ambulance while I took my kids to the neighbors, and followed in the next breath with if you kept waking up at 3am to your husband in trouble you’d take less than 3 weeks to fix it. I snapped her out of black-man-on-medicaid by tugging on her emotional connection to her family.
It is sad, but true.
I don’t want rath, I don’t need punishment, I just want the system to change and stop hurting someone I love.
Medicine has hurt me, my parents, my brother, and now my husband too. Enough is enough.
I want better. I deserve better. I deserve healing for everyone in my life. I deserve a medical system that actually cares about people. First do no harm was lost long before it ever actually mattered, and no one seems to care to get it back.
May you know how to attract better into your life. May you never see the touch of discrimination because we actually truly live equally. May you understand we are all in this together. May you understand we all deserve a choice, and we all deserve treatments that actually work. May you know that above all the divine loves and supports you in all that you do.
One is another small ink drawing for fun, I’ll probably finish on Saturday… Maybe the one after, we’ll see. It is of a Hamsa.
The other is a drawing of a furry friend of a really good and kind person that really needed a major pick-me-up. She just happens to be a friend and coworker and the person treating my husband weekly. Her dog is named Herky, short for Hercules, he was a gentle giant of yellow lab. She deserves a good image so I’m doing my best to be meticulous. I also know for certain that she will appreciate my work and treasure it, where past gifts to family were not (going back years).
Thirdly, I felt the need to make a short-ish statement. I do not hate individuals working in medicine as a generalization. Most of them are doing their best with the information and tools they were trained on. They are all trained on specific rules and procedures in a specific system. I have several clients that are really good people doing their best in an effed up system, and are willing to admit the failings of their profession (s).
What I do hate is the system. I do hate the ones that half ass their jobs and don’t do things they know should be done. I do hate the ones that assume that everything they were trained on was all they ever needed to know, and write off anything else as being helpful. I hate the ones that learn the basics, but if the basics fail they have no idea what else to do. Those are the ones that do a great disservice to everyone they work with. Those are the people that could have killed me. I know without a shadow of a doubt that if I had done what those “medical professionals” had said was good enough, then I would already be dead.
Up until 7 years ago I danced with death more than I didn’t. Everything they had said had failed many times over and I had regularly contemplated suicide, and tried a half dozen times unsuccessfully. Their antidepressants did nothing to help. Metformin didn’t help. I was in serious pain mentally and physically and 300 pounds.
I needed a solution or I was going to die very young.
I did research on alternatives based on loose suggestions and friend’s, even stranger’s journies. I figured out, and started fixing, my own thyroid disease and then those doctors told me I was being dangerous. That iodine (an essential nutrient) was too risky, that I should just take a generic dose of synthroid and behave. It failed and I almost killed myself again, driving 90mph towards an overpass pylon, with my 3 month old child in the carseat behind me. Angels saved me and Ian that day.
I vowed to fix it, so my child never had to go through that.
And I’m getting there, not only an I healing my thyroid, I’m healing the root cause too. It’s slow, but sure as I’m sitting here writing this post, I am certain I am. Even without the precious IV treatments that would speed it up. I now have evidence to show for it.
I’m much smaller, only slightly lighter though, still holding at a little over 200, but much more muscle and much less fat. My skin stays clear, my mild dietary fails hurt less. My skin is shrinking slowly. And most of all, my dances with death are now very few and very far in between. My temper is still there but much less destructive, and I’m learning to control myself especially including my strength. I can’t even begin to convey how much more stable my brain function is and how much less dark it is than it used to be. I’m a better person in many ways. It is my proof.
Now I’m doing my best to teach my husband and children, to help them through their lives. Nathan already knew a lot of what I was doing and why, but now that he has increased reasons to try, he’s making an even more concerted effort to keep up with my standards for myself.
All of this has made me grateful that me and Ian almost died. I made a solmn vow and I intend to keep it.
I’m grateful that doctors failed me because I’ve proven that you can heal yourself and fix yourself with enough research, effort, and loving support. I’m grateful that I had just enough inspired moments to keep me alive and keep me trying again and again. I’m grateful that the divine has guided me though a very difficult and complex set of bodily functions to unravel my health concerns and point me towards healing. I’m grateful that even though I’m unable to accomplish the IV treatments, that I’m smart enough to figure out the next best things. I’m grateful that I’ve strengthened my willpower to be able to stick to things enough to help heal my body. I’m grateful for all of it, because it shows everyone aware of me, that there is always an alternative and there is always a solution- if you stay open to it.
May you see the scary and upsetting moments in your life in the best light. May you know your worth and that your efforts really have mattered. May you find your healing. May you know that the divine loves and supports you in all that you do.