Tag Archives: auto-immune hypothyroid

On Repeat.

I have had this song on repeat for a couple days now, just keeping me afloat and functional. I wanted to share.

Doctor visit this afternoon after work resulted in a list of labs to be drawn ASAP (lab had closed by the time I finished with my visit). The goal is to rule out other problems, check my thyroid levels again, and check Covid antibody levels (if it hasn’t become another chronic infection then they should be low if they register at all). I also have to do another thyroid ultrasound to see if there are any significant changes. Once all of that comes back I will have a follow-up appointment on the 9th. Barring anything scary that is.

The acupuncturist had recommended drawing an immune panel to see if any other/new autoimmune antibodies were active and to check levels of the known Hashimotos and EBV. The doctor didn’t say no to that idea but essentially said she needed to start with all the basics first.

The lady I saw today, a PA, wasn’t well versed in thyroid, no surprise there, as few are. She said that she would rather I be on Levothyroxine. I told her it failed me miserably the last time I took it and I went 4.5 years successfully taking Armour/NDT. She said ultimately depending on lab and ultrasound results I may just end up needing a referral to an endocrinologist. I didn’t shoot that down for her, even though the two I went to previously were not much better versed than she is. I really hate this system.

The acupuncturist told me to have patience with the tedium and that I was doing the right thing. I need the labwork, but I’m so sick of blanket treatments and all we know is thyroid=levothyroxine or thyroid cancer= surgery/cancer treatment/ lifetime of levothyroxine. It’s all bullshit.

But then Nathan reminded me we have much better aim and are more successful hacking things once the full problem is known. So right now were searching for a total picture of what needs addressed. Is it even still just my thyroid, and if so, is it because my thyroid is worse off or because my regimen isn’t meeting needs? Once I have some basic answers I will know better how I need to adjust. I have contemplated going fully AIP level 1, essentially a raw food diet sans any nightshades, seeds/legumes/nuts/grains. It is a miserable existence food wise, but I’m willing if it actually truly solves anything.

See that is the catch, that whole I’m never good enough belief that was brainwashed into me. It hasn’t been good enough that that I’m AIP with some nuts/legumes, no let’s nix everything and go raw, because it’s literally the only option left. Feck you, and if the divine is going to force me into that kind of stupid level of clean than it better fucking matter, or I’m throwing in the towel for life. I’ll willingly give up and accept death. The Divine Masculine is an asshat. Just sayin’.

Could have been healed ages ago, but no I had to catch covid and have and EBV flare in the same year. Or I could’ve had those negative beliefs healed, god knows I’ve asked for that enough times, and if they are the sole cause then heal that first damn it- I’ve been doing the work I deserve some results. Or I could have had the resources to quit working, eliminate stressors, hermit and monk myself into healing. But no, I’m dealing with a broken system yet again, to attempt to get answers to help myself AGAIN. Where is the divine in this mess? Fucked up way of doing things I’ll say.

Anyway, my frustrations aside, I’m taking steps that I know will guide me. Seems as usual my own spirit seems to be the only thing on my side, and I’m doing my best to acknowledge it and follow steps. Hopefully I will finally win this battle for once and for all and get my happily ever after. I have way more than fecking earned it. I deserved it well before 2020 and was well on my way to getting there before 2020 happened. Give me my results back and more because of a lost year of stupid nonsense full of shit I couldn’t control.

May you have the answers you need. May you know exactly what you need to do and how to accomplish it. May the divine help you leap gaps you struggle to bridge alone. May the divine heal us all and guide us all to better days. Above all may you know that the Divine loves and supports you in all that you do.

Om Shanti

And for good measure one more applicable song:

Everyone finally cares.

I have been focusing very intently to pull up lately, and have had to resort to various herbal aids. So this will be the first of several posts that were inspired in that process. This was the result of the lower vibrations, feeling some futility and anger. Subsequently as my vibration climbed I thought of other topics to write about. I started each topic as the thought occurred, so I’ll get them done and up as quickly as I’m able to.

My thyroid is bouncing all over despite taking my Armour doses. My blood sugars are uncontrollable and inflammation is rampant, despite doing all the things that used to work. I have been doing EVERYTHING right, and I’m taking all of my supplements plus several new ones, especially for the sugar battle. I’m still strictly AIP, and mostly seaweed and celery, I’ve even managed to cut back on frequency of lapses/oopses. I’ve had a super-humanly-clean 6 months. Additionally, I don’t feel very stressed, so it all points to my body’s still, or again, trying to fight something, or several somethings, off.

I suspect it’s a combination of that chronic Epstein-Barr-Virus battle (undiagnosed for 20+ years) and Covid. I’m not active Covid, but ever since catching mystery virus (testing wasn’t available here when I was told I had an unknown virus), I’ve had more trouble in general this past 12 months.

It doesn’t help that my awareness includes Covid living casualties.

One of my clients is what is being deemed a Long-Hauler, being he tests negative but still has multiple symptoms that are nagging him almost two months later. Some of his symptoms overlap with my thyroid woes and the extra anomalies I have faced this year. I also have an acquaintance/friend that has reported similar long-term problems from her known Covid case.

Beyond that my whole family is struggling long-term with spaciness, sluggishness, and brain fog. My son who faired the worst with mystery virus infection, has now begun having more significant lapses. Essentially, he has been having functional blackouts. One almost caused him harm. He was caught by Nathan entering our neighbors backyard in socked feet with their dogs barking at him. He didn’t realize where he was or how he had gotten there. It’s very disheartening and concerning.

Chronic viral infections wasn’t a concern on anyone’s radar until Covid, and I still have no idea why.

Even for AIDS and Hep B we have expensive cocktails to manage symptoms and reduce viral load, but no true fix. And I’ve been saying the entire Covid journey, that it boggled my mind how people were so upset about a new disease when we’ve done nothing for existing viral diseases. I’ve said the entire time that vaccines only pretend to protect people from some diseases. Between vaccine fails of a wide variety, and the fact that a vaccine is impossible to produce until much after a disease has already begun to spread, they simply don’t truly protect us. Also, there are numerous diseases that vaccines have never been created for, Epstein-Barr being just one, and bonus we now know it is very hazardous long-term for many.

I am beginning to think that Covid is the new Epstein-Barr. I shudder to think how many people will endure long-term woes for years before true solutions are developed, especially since western medicine is still full of greedy bastards enjoying making money off of our fears and symptoms. As long as the system allows them to make so much money off of treating symptoms alone, they will have no incentive to create real lasting solutions.

When we can solve computer viruses better than human viruses, there’s a major problem. See the incentive there was we had begun to rely on our computers for everything, and if they had gone down we’d all have been screwed. Even computer manufacturers relied on their own devices, and would have been mamed if solutions for electronic viruses had not been developed.

Yet, after approximately 100 years of study on biological viri, we still have no real true permanent solution for human viruses, which means there is no incentive for pharma to solve it.

Perhaps if Covid is really behaving like Epstein-Barr, then maybe everyone will begin to understand that it is imperative to find a kill switch for viral infections. I would have thought AIDS and Hep B would have done that, but apparently not enough people caught those diseases.

Or maybe it’s not the quantity of people, but who. Maybe it needs to become an issue for all of the elite, all of the CEOs and upper management of pharma. Maybe then we’ll actually see change and real solutions.

We need real treatment(s) to help find actual health and kill chronic disease. It’s not a new problem, but perhaps enough people, or the right people, will finally get it and work towards finding the real solutions.

Finally, I want to add my two cents on progress vs failure. Western medicine will finally produce more true healing options for all diseases, or it will fail. People have begun to distrust doctors to do their jobs, clinics to help when they don’t feel right/well, and pharma to make anything that actually works permanently. Western medicine knows they’re loosing too many. People no longer trust them to do what’s right. The masses have begun to notice the greed machine pasting temporary bandages on symptoms, knowing the bandage will only last so long before it will need replaced by the next best option.

People now know their options are limited. I myself have come to the point that if all I’m doing is managing symptoms, what does it matter if it’s herbs or prescription drugs. Either way it’s not going to fix anything and I might as well give in completely, at least that way I can enjoy what life I do have. The manage symptoms game is not only futile, requiring constant adjustments, it’s ultimately it’s a shit ton of work to get nowhere and thus pointless.

Anyway, if there are any other long term major failures, then Western Medicine will have lost trust with too many people. People will simply start walking away from the expensive useless symptom management game. Allopathic medicine is balancing on a ledge that could easily lead to systemic bankruptcy. The only way for the system to be salvaged is for the parts to work as a whole and actually produce long-term solutions beyond symptom management. But that’s just my observation.


For now I choose to focus on the positives. I focus on the fact that my physical size is smaller. My skin is shrinking, so even though it still sags from weight loss, it’s no where near as floppy as when I initially lost weight. I no longer have allergy bumps in odd places. I no longer have the red ruddy cheeks I grew up with. My muscles are stronger than ever, and in many ways my visible appearance is improving significantly. I still have beautiful soft hair, and my thyroid is managed well enough that I’m no longer loosing my hair. I can handle full time massage therapy work with a manageable amount of discomfort. In general I usually feel better than in my past. I’m able to workout most days and that helps me feel even better. In fact, I’ve exercised all but 6 of the last 30 days. I am doing EVERYTHING right, and that has to count for something, so I’ll ignore what’s not in alignment yet, with the assumption that it’ll get there eventually, one way or another.

May you have better luck and more trust in Western Medicine than I do. May you find, and be able to afford, options that can solve your problems for real. May you have reachable, life affirming, choices within reach. May you know you are healthy in every way possible. May you know you have many days left to live and have all the reasons to keep living. May you know that your love and magic can conquer all. May you know that more than anything, God loves and supports you in all that you do, and regardless of your ability to get your body in full vibrational alignment.

Om Shanti

My experience of Allopathic America

I’m writing today to discuss my current situation and treatment goal, but also to expound on how Allopathic medicine is now a money maker and no longer concerned with general health, well-being or full healing. I of course am only speaking to my experience and knowledge which lies in the Great US of A.

So if you’ve been a regular reader you know the basics. If not the more brief synopsis is:

I’ve lived with undiagnosed thyroid concerns since I was 12 years old, the lonely unknown battle took it’s toll with severe suicidal depression (medications did not solve) and uncontrollable weight. Then, I met a lady on a train when I was 29 that cued me onto iodine and thyroid supplements. Because it was helping her and we had similar histories, I tried it, and lost 45 pounds in a month and then found myself pregnant. When I was 31 I gave birth to my son and my thyroid crashed hard, enough I almost killed myself and I was forced to seek help. Then began my journey dealing with doctors and trying to get accurate dosing and helpful medication to begin with. It forced me to begin learning about thyroid disease, medications and lab testing. I have since battled with doctors to keep my thyroid managed well and have utilized the Auto-immune Paleo diet, iodine supplementation, and seaweed to accomplish most of the relief I have gleaned, I intentionally work very hard to keep my need for medication low. I exercise regularly, can lift quite a bit of weight and am healthy by all measurable standards except body weight. Yet I knew something still wasn’t right when in January I could feel my thyroid irritating my voicebox. After an ultrasound finding multiple nodules on my thyroid, I spoke with one of my clients that has had a similar journey. She filled me in on a treatment she had done to eliminate a virus that had been hiding in her body slowly damaging her thyroid and other organs. It completely healed not just the virus, but the damage to her organs too. It was expensive so I put it in the back of my mind and said eventually I will get there.

However, God seems to think I need to act sooner. Fast forward to 2 weeks ago.

I got what I thought was strep throat, and not my first round of it. What I was dealing with looked and acted like it. The doctor begrudgingly did a swab that came back negative, but since I had already started the antibiotics and Prednisone she ordered I finish the doses out. Right as the strep throat symptoms were ending I got a nasty rash on my upper thigh. It at first looked like standard hives, so I was perplexed thinking I reacted to the antibiotics and Prednisone when I never had before. Then larger blisters appeared in the center of the rash and they hurt like crazy. I couldn’t figure it out at first and the doctor had pissed me off so bad with how she handled the strep swab that I knew I didn’t want to deal with her again. I prayed on it and did some meditations and otherwise kept moving and functioning, but was careful to be mindful of mask wearing in case the perceived strep was something else entirely.

Two days into the rash I remembered the conversation with my client about the virus and the treatment that was done to solve it, and the memory just nagged and nagged at my brain. I looked up the virus she had talked about, it was the Epstein-Barr Virus (see here for wikipedia info). Interestingly, that virus can mimic strep throat and occasionally does cause a nasty rash. I had never had the rash before but have had strep several times where it didn’t come back as positive on strep tests. I decided to skip the doctor and test the theory myself. First I did the acute mononucleosis test for $69, that in theory would catch an active EBV infection. It came back negative, which apparently 25% of tests can be false negative because of how the test looks for the virus. So I decided to do the more thorough Chronic EBV test. $169 later I was holding test results that showed really high values for only one of four of the antibody markers. The other 3 were in negative range. But the one antibody was so ridiculously high that the test results came with a disclaimer that it was significant of a recent infection. So I had my smoking gun. I was in fact dealing with an EBV infection, and one that was good at hiding in my body and not triggering all of the antibodies.

Like my client had told me, EBV can hide in the body for years and does a whole host of damage to various organs, the thyroid just being one. It can also damage both the pancreas and liver, which are the other organs I have noticable difficulty with, manifesting in my food sensitivities and glucose control. If left unchecked EBV can also lead to multiple cancers and lukemias.

So now I finally had an ‘Ah Ha’ moment. I finally knew the cause of my 25 year journey of ill health despite having been to many doctors in 4 states during that time period. I have in my hands, proof of the virus being in my body in a chronic way. It is most likely the cause to all my concerns, and if I can clear my system long enough I can enable my organs to heal and health to return.

Enter the treatment my client did.

She went to a functional medicine doctor that discovered her Chronic EBV infection and he did a treatment called IV Oxygenation Therapy. The doc costs an initial consult of $600 plus $100 per month subscription fee which covers up to two office visits. The IV treatment is $2000.00, and if I haven’t already done all the labwork he needs then there may be other additional costs. Insurance, if you have it, would only cover labwork, I don’t anyway and I am always cash pay. So I need essentially $3000.00 to attempt to kill the virus and damaged tissues and instigate full healing. However, the process is hard on the system, so my client had explained she was down for 5 or 6 days afterwards because of the cellular die-off and detoxing, so I will also have to account for missing a week of work as well.

Beyond my frustrations over cost and managing to actually implement something with the potential to end my battle for health, I am super frustrated at the awareness I now have of our medical system.

Essentially, a dozen+ doctors in multiple offices in four different states and 10 different cities over 25 years, and none of them even came remotely close to really truly accurately diagnosing the problem. Every last one of them either gave up easily (as with the “low side of normal” tests from childhood) or decided to treat the one symptom of low thyroid function.

If I had not taken the time to educate myself on the problem I was faced with and kept digging knowing that something was still wrong, then I could have spent 30 to 40 years taking thyroid meds to end up with cancer and potentially die from it.

Western medicine as it currently stands in America is concerned with two things. 1) A minimum of treatment to ensure you stay alive, not well, just alive. 2) Making money indefinitely via treatment of symptoms only, rare cases like certain cancers they will treat with the premise of eradicating the disease, but still favor expensive treatment over cheaper more effective options.

You may wish to disagree with me on either, but evidence is piling up to support both.

I have written on several occasions in regards to how elder care and instutionalized medicine are more concerned with keeping an elderly person alive than actually providing the ability to live life. It is how we end up with people bed bound or wheelchair bound for years at the end of their life. Unable to do many tasks, but still alive and suffering. I have directly worked with dozens of such people where my massages are intended to help prevent skin tears, bed sores, and maybe just maybe provide a little relief from discomfort of being frozen in place.

But yet, it’s more than that. Part two listed above is very evident for me. Not one doctor ever said, your thyroid is struggling, there’s potential we could solve that and get you back to normal. No, in Western Medicine normal is live on this drug until you die. If that drug quits working we’ll double the dose or switch to another. Never is it, try to heal you and get you back to normal.

Even with cancer, the goal is cut and chemo and radiation. We now have several options that have better potential at lower costs, liquid Vitamin C at massive doses can kill cancer, turmeric extract has also been shown to have similar results, and beyond that we now have Car-T. But Car-T is too effective, even though it is still expensive, it only takes one full round of treatment and 99% of cancer can be completely healed. It simply cuts their profit margin by too much.

Any treatment that offers the potential for full healing is either sidelined by the AMA and CDC or is outright attacked by both. The more clinical and lab tested something is, the less they are able to attack it, but if it cuts profits then it will never be fully supported.

So, if you as a reader, want a real solution to whatever health problem you are facing, then you have to do the following:

  • Take charge of the problem, learn everything you can on the subject and follow the rabbit hole as far as it will lead you. Even then you might need to dig a little further.
  • Learn to read the labs of anything that needs tested. It’s not hard and the information is readily available if you know the trusted resources to seek out. If you get fuzzy on interpretation there are usually forums where people discuss their lab results.
  • The hardest part- Find a doctor that: 1- isn’t threatened by your intelligence and concern for your own health, and 2- might have alternate solutions or is at least willing to try something you propose. You may have to seek alternatives to your standard MD.
  • Finally, listen to your intuition. God wants you to heal and will give you the breadcrumbs to follow, but you have to trust that process. If something feels wrong it is, if something feels missed it is, if something feels right it is, if something nags at you- look into it, it probably means something important. Trust and God will guide you to a real solution.

As for me, I finally have a plan for a potentially final but expensive step. My biggest hurdle is money and I’ve overcome that one many times. I know I can do it again. I will do my best to allow and know that timing is everything. God will enable me to fix this for once and for all, and I will have avoided the worst case scenario for this disease.

As for you: may you have the solutions you seek. May you always have the proper resources when you need them. May you find helpful doctors that listen and do their best to meet your needs and find real solutions for your problems. May you trust God and be able to follow the breadcrumbs. May you see the solution you seek. May you understand that you are loved and supported. May you have the support you need from those around you. May you feel the love and support when it is needed most. May you know God wants you to be well. May you find the joyous healthy life you desire.

Siva Hir Su