Tag Archives: auto-immune hypothyroid

My experience of Allopathic America

I’m writing today to discuss my current situation and treatment goal, but also to expound on how Allopathic medicine is now a money maker and no longer concerned with general health, well-being or full healing. I of course am only speaking to my experience and knowledge which lies in the Great US of A.

So if you’ve been a regular reader you know the basics. If not the more brief synopsis is:

I’ve lived with undiagnosed thyroid concerns since I was 12 years old, the lonely unknown battle took it’s toll with severe suicidal depression (medications did not solve) and uncontrollable weight. Then, I met a lady on a train when I was 29 that cued me onto iodine and thyroid supplements. Because it was helping her and we had similar histories, I tried it, and lost 45 pounds in a month and then found myself pregnant. When I was 31 I gave birth to my son and my thyroid crashed hard, enough I almost killed myself and I was forced to seek help. Then began my journey dealing with doctors and trying to get accurate dosing and helpful medication to begin with. It forced me to begin learning about thyroid disease, medications and lab testing. I have since battled with doctors to keep my thyroid managed well and have utilized the Auto-immune Paleo diet, iodine supplementation, and seaweed to accomplish most of the relief I have gleaned, I intentionally work very hard to keep my need for medication low. I exercise regularly, can lift quite a bit of weight and am healthy by all measurable standards except body weight. Yet I knew something still wasn’t right when in January I could feel my thyroid irritating my voicebox. After an ultrasound finding multiple nodules on my thyroid, I spoke with one of my clients that has had a similar journey. She filled me in on a treatment she had done to eliminate a virus that had been hiding in her body slowly damaging her thyroid and other organs. It completely healed not just the virus, but the damage to her organs too. It was expensive so I put it in the back of my mind and said eventually I will get there.

However, God seems to think I need to act sooner. Fast forward to 2 weeks ago.

I got what I thought was strep throat, and not my first round of it. What I was dealing with looked and acted like it. The doctor begrudgingly did a swab that came back negative, but since I had already started the antibiotics and Prednisone she ordered I finish the doses out. Right as the strep throat symptoms were ending I got a nasty rash on my upper thigh. It at first looked like standard hives, so I was perplexed thinking I reacted to the antibiotics and Prednisone when I never had before. Then larger blisters appeared in the center of the rash and they hurt like crazy. I couldn’t figure it out at first and the doctor had pissed me off so bad with how she handled the strep swab that I knew I didn’t want to deal with her again. I prayed on it and did some meditations and otherwise kept moving and functioning, but was careful to be mindful of mask wearing in case the perceived strep was something else entirely.

Two days into the rash I remembered the conversation with my client about the virus and the treatment that was done to solve it, and the memory just nagged and nagged at my brain. I looked up the virus she had talked about, it was the Epstein-Barr Virus (see here for wikipedia info). Interestingly, that virus can mimic strep throat and occasionally does cause a nasty rash. I had never had the rash before but have had strep several times where it didn’t come back as positive on strep tests. I decided to skip the doctor and test the theory myself. First I did the acute mononucleosis test for $69, that in theory would catch an active EBV infection. It came back negative, which apparently 25% of tests can be false negative because of how the test looks for the virus. So I decided to do the more thorough Chronic EBV test. $169 later I was holding test results that showed really high values for only one of four of the antibody markers. The other 3 were in negative range. But the one antibody was so ridiculously high that the test results came with a disclaimer that it was significant of a recent infection. So I had my smoking gun. I was in fact dealing with an EBV infection, and one that was good at hiding in my body and not triggering all of the antibodies.

Like my client had told me, EBV can hide in the body for years and does a whole host of damage to various organs, the thyroid just being one. It can also damage both the pancreas and liver, which are the other organs I have noticable difficulty with, manifesting in my food sensitivities and glucose control. If left unchecked EBV can also lead to multiple cancers and lukemias.

So now I finally had an ‘Ah Ha’ moment. I finally knew the cause of my 25 year journey of ill health despite having been to many doctors in 4 states during that time period. I have in my hands, proof of the virus being in my body in a chronic way. It is most likely the cause to all my concerns, and if I can clear my system long enough I can enable my organs to heal and health to return.

Enter the treatment my client did.

She went to a functional medicine doctor that discovered her Chronic EBV infection and he did a treatment called IV Oxygenation Therapy. The doc costs an initial consult of $600 plus $100 per month subscription fee which covers up to two office visits. The IV treatment is $2000.00, and if I haven’t already done all the labwork he needs then there may be other additional costs. Insurance, if you have it, would only cover labwork, I don’t anyway and I am always cash pay. So I need essentially $3000.00 to attempt to kill the virus and damaged tissues and instigate full healing. However, the process is hard on the system, so my client had explained she was down for 5 or 6 days afterwards because of the cellular die-off and detoxing, so I will also have to account for missing a week of work as well.

Beyond my frustrations over cost and managing to actually implement something with the potential to end my battle for health, I am super frustrated at the awareness I now have of our medical system.

Essentially, a dozen+ doctors in multiple offices in four different states and 10 different cities over 25 years, and none of them even came remotely close to really truly accurately diagnosing the problem. Every last one of them either gave up easily (as with the “low side of normal” tests from childhood) or decided to treat the one symptom of low thyroid function.

If I had not taken the time to educate myself on the problem I was faced with and kept digging knowing that something was still wrong, then I could have spent 30 to 40 years taking thyroid meds to end up with cancer and potentially die from it.

Western medicine as it currently stands in America is concerned with two things. 1) A minimum of treatment to ensure you stay alive, not well, just alive. 2) Making money indefinitely via treatment of symptoms only, rare cases like certain cancers they will treat with the premise of eradicating the disease, but still favor expensive treatment over cheaper more effective options.

You may wish to disagree with me on either, but evidence is piling up to support both.

I have written on several occasions in regards to how elder care and instutionalized medicine are more concerned with keeping an elderly person alive than actually providing the ability to live life. It is how we end up with people bed bound or wheelchair bound for years at the end of their life. Unable to do many tasks, but still alive and suffering. I have directly worked with dozens of such people where my massages are intended to help prevent skin tears, bed sores, and maybe just maybe provide a little relief from discomfort of being frozen in place.

But yet, it’s more than that. Part two listed above is very evident for me. Not one doctor ever said, your thyroid is struggling, there’s potential we could solve that and get you back to normal. No, in Western Medicine normal is live on this drug until you die. If that drug quits working we’ll double the dose or switch to another. Never is it, try to heal you and get you back to normal.

Even with cancer, the goal is cut and chemo and radiation. We now have several options that have better potential at lower costs, liquid Vitamin C at massive doses can kill cancer, turmeric extract has also been shown to have similar results, and beyond that we now have Car-T. But Car-T is too effective, even though it is still expensive, it only takes one full round of treatment and 99% of cancer can be completely healed. It simply cuts their profit margin by too much.

Any treatment that offers the potential for full healing is either sidelined by the AMA and CDC or is outright attacked by both. The more clinical and lab tested something is, the less they are able to attack it, but if it cuts profits then it will never be fully supported.

So, if you as a reader, want a real solution to whatever health problem you are facing, then you have to do the following:

  • Take charge of the problem, learn everything you can on the subject and follow the rabbit hole as far as it will lead you. Even then you might need to dig a little further.
  • Learn to read the labs of anything that needs tested. It’s not hard and the information is readily available if you know the trusted resources to seek out. If you get fuzzy on interpretation there are usually forums where people discuss their lab results.
  • The hardest part- Find a doctor that: 1- isn’t threatened by your intelligence and concern for your own health, and 2- might have alternate solutions or is at least willing to try something you propose. You may have to seek alternatives to your standard MD.
  • Finally, listen to your intuition. God wants you to heal and will give you the breadcrumbs to follow, but you have to trust that process. If something feels wrong it is, if something feels missed it is, if something feels right it is, if something nags at you- look into it, it probably means something important. Trust and God will guide you to a real solution.

As for me, I finally have a plan for a potentially final but expensive step. My biggest hurdle is money and I’ve overcome that one many times. I know I can do it again. I will do my best to allow and know that timing is everything. God will enable me to fix this for once and for all, and I will have avoided the worst case scenario for this disease.

As for you: may you have the solutions you seek. May you always have the proper resources when you need them. May you find helpful doctors that listen and do their best to meet your needs and find real solutions for your problems. May you trust God and be able to follow the breadcrumbs. May you see the solution you seek. May you understand that you are loved and supported. May you have the support you need from those around you. May you feel the love and support when it is needed most. May you know God wants you to be well. May you find the joyous healthy life you desire.

Siva Hir Su

It’s OK, I got this Shi*

Ok, So my ultrasound results will not be back until sometime early next week. The tech wasn’t allowed to say anything except that the radiologist would need up to 24 hours to read the scans and submit the report. Then my doctor will receive the results and take her time before notifying me of the official report.

I am not stupid, and know very well how sonograms work. As she was clicking and scanning, I counted at least 7 spots that she stopped and measured. On the way out of the clinic I received one of my God message plates: 708 ARE… so I likely counted 7 of 8 nodules. It is not uncommon for 2 to be right next to each other.

Anyway, I’ve already been refreshing my knowledge on thyroid issues since the not stellar labwork in March. However, knowing for certain I am dealing with nodules of unknown sizes, I needed to refresh my knowledge on what to do.

I visited these pages, since I know it has been a very reliable source for me several years running:

https://stopthethyroidmadness.com/thyroid-enlarged/

https://stopthethyroidmadness.com/2014/08/02/case-missing-thyroid-nodules/

To my amazement, I had been doing everything correctly. Had being the operative word. I had backed off because of dancing the line of high symptoms. I had thought I was overdoing it and reeled back significantly. According to the data in the one ladies’ case study I should have only backed off a little. That range of walking right up to the high line, but doing your best not to cross it. It’s a fine window, which for me is sometimes a single drop of iodine in difference.

So, I know what to do, and regardless of what the doc says (probably just watch them), I will proceed accordingly. Please do continue to send prayers. Even making the assumption they are benign, I do believe in the power of prayer and gladly accept any and all help I can get. I am sure that they will wait 3 to 6 months and rescan to see my progress. I personally hope the next scan will be a huge improvement.

As for myself today, I have a light work day, so I intend to get some exercise on less treacherous terrain, re-up my seaweed stores, and look into getting some really high quality CBD oil (maybe even cannabis gummies now that MO is medically legal). It all helps and I have a renewed interest and zeal for knocking this out of the park.

May you find confidence in your abilities and knowledge. May you know howto handle your health and create solutions and healing. May you be certain of your okay-ness. May you know it is all alright. May you have support and love always, but especially when you need it the most. May you know you are cared for.

Siva Hir Su

Update; Fast results. One friend said : yay pandemic 🤣. I’m inclined to agree. There were several nodules, she didn’t specify exact number, but commented they were mostly small. There was only one that was even large enough to biopsy (2mm larger than minimum biopsy size) and it’s the one I can feel pressing on my voicebox. They think when the inflammation goes down it will to, so consensus is to rescan in 8 to 12 weeks. I totally got this shit. Happy dance!

Doubling Down

SO, I had my appointment today. The doctor I originally spoke with has family with medical concerns, apparently long term and so he has minimal office hours. The results, I was assigned to see his PA. I was less than impressed with her.

The conversation that I had with him was nearly night and day from what she wanted to do. I talked to him about an option to get my immune system to subside and she went on a Metformin tangent and completely disregarded the LDN option to help calm immune function. At the end of an hour appointment, I walked away with the knowing that she had taken a similar journey and given up because she couldn’t stick to diet protocols. She called them unrealistic and had decided that living on metformin and thyroid meds was the only “livable option”.

All I can say is, how can anyone in their right mind decide for a patient at 37 years of age, that living on Metformin and Thyroid medicine is the only way to get through life. I could easily live for another 40 to 50 years, and if I decided to choose meds as an indefinite option now, then what will happen when those meds become insufficient in 10 or 20 years. The answer that is more and more frequent for many patients is: higher and higher doses, then when capped out, add other medications and then increase doses of those. Repeat until either death or options run out. That is how I have 80 and 90 year-olds on cocktails of 20 medications, that essentially circle back to the same few problems. And those cocktails always have side effects ranging from wicked dry mouth, to no tear production, to a constant watering of eyes, to muscle spasms, diarrhea, constipation, and major fluid retention. I often wonder with all their side effects why patients ever let doctors pile the meds on, but one after another, after another it happens.

Regardless, of the original doctor’s suggestion, or the PA’s suggestion, the answer was still long term indefinite medication usage. Neither one actually offered a real true solution. Neither of them could offer a path to normal biological function as I was born with. So again I am infuriated with western medicine. All their big claims and no real usable results. I don’t understand how doctors can live with themselves. How can you, day-in and day-out, market yourself as a healer- a health care provider and not actually fix anything. Medications don’t fix things. They mask symptoms at a very nice cost for big pharma, and they claim you as their unwilling victim until the day you die, never ever getting to break free of the vicious dosage cycle. Then to acknowledge that my problems arose after vaccinations I am extra livid. You broke me with something intended to keep me from catching a disease, and now I have problems that you want to solve by medicating me for 40+ years. Cause my problem and then you can’t solve my problem. I don’t think so.

Anyway, I’ll get my sonogram (probably Thursday or Friday as I need to call a seperate office to book that appointment in the morning). Once I have the results of the sonogram, I’ll base full decisions on that. If it is just the nodules and cysts common to thyroid patients, then I’ll move on. If it is deemed tumor or cancerous, I’ll need to look at options closely.

For now, I am assuming that it is the nodules and I am deciding to double down on my protocols.

I had a long conversation with Nathan. I have already discussed with him several times that I needed to get back on the full pregnancy regimen, but this evening it somehow clicked for him. He is now really excited about helping me to have a not-baby of healing. We talked about all the details, and how I need his support with this as much as both real pregnancies. I reminded him of how I need the most help with willpower since there isn’t actually a bun in the oven. He reminded me though of how I am already doing spectacular, that I am already doing way more than the average person. I know this, and even the stupid PA admitted that I am doing way more than most people even could. That doesn’t mean it is enough, and I need to find out what enough is for me.

So we broke it down to remind ourselves:

  • I now know that almonds, chocolate, and chickpeas/garbanzo-beans were culprits causing at least some of the reactions that plagued 3rd trimester of Katherine and have slowed me down the last 6 months. They have now been eliminated.
  • I know that when pregnant it was a must to get 45-60 min of exercise a day. I now know that needs to include at least some running. No more passes on exercise- I must do it everyday, no matter what. Gyms reopening will help with that, but I will take to climbing up an down stairs at home or work if I have to.
  • We know that when I was pregnant I had to eat something every hour to two tops. If I didn’t eat often enough it was nausea and puke city. If I ate too frequently I couldn’t control glucose numbers. So it very much directly affected my metabolism in a huge way.
  • With the eating, it’s very low carb, allergen free, at this point pescatarian, and I must compensate for no baby calories. That means 300 calories less per day than my pregnancy average. Yikes. And in tiny doses.
  • Some nuts are okay as long as I really watch serving size and calories, no walnuts or almonds for the allergy flag.
  • Some vegetables can slow thyroid function, so I can eat them, but need to be conscious of how frequently and quantity. These would mainly be: Kale, Broccoli, Cauliflower, and Cabbage. Spinach is kind of on the fence because its iron levels help process existing thyroid hormones, but it can be similar to kale in the slow the thyroid function.
  • I must make sure to do the anti-inflammatory things I know work: sunshine in the first hour of my day, turmeric, brommelain, exercise, and proper sleep duration and timing.
  • Minimal fruit, with blueberries and apples being most tolerable. Other berries okay in smaller doses. NO oranges/clementines/grapefruit (I have folic acid processing difficulties.)
  • Chia pudding with stevia is still a good filler giving the metabolic benefits of the trigger of eating, but not causing any caloric or sugar effects.
  • Celery and carrots and regular lettuces are great… I pointed out to Nathan: “Do I like it? Do I want it? No to both- Great I can eat all I can stomach!” Sarcasm aside, that seems to be the real equation here with food. If it isn’t something I care to eat a ton of, then I can consume as much as I can convince myself to chew. If I want to binge on it, then I really shouldn’t have any at all. It’s vexing emotionally, exasperating, but at least it is a relatively easy one to follow.
  • I’m going to stick to no meat since it was causing reactions last fall. Only occasional fish/shrimp.
  • Continue with grain free and minimal beans since it seems only green beans and peas are tolerated well.

So, after having gone over all of that with Nathan we went home and put together tomorrow’s food. 2.5 oz nuts, 2.5 oz Peanut Butter. More celery than I care to look at. A whole cucumber sliced up. 2 small salads no toppings. 3 oz of homemade coconut milk “dill dip” and my homemade blueberry vinaigrette. Finally, 1 small apple. Yay rabbit food.

My goal is 9 months of not-pregnancy. Hopefully at the end of that journey will be a much smaller and healed me. I hope that one day I might be able to eat like normal human beings. Not societies’ current standard of normal with all the crap foods and highly processed everything. No real human normal, where grains and beans are okay in small doses, and my immune system lets the occasional lapse slide without reaction. That would be a nice day.

Side note I wish I could find a doctor like this guy (see link) here in KC. That seems an impossibility. https://drhyman.com/blog/2010/07/30/how-to-stop-attacking-yourself-9-steps-to-heal-autoimmune-disease/

May you have an easy road to recovery. May you know real healing is in reach. May you find yourself able to stay away from doctors. May you know your solutions and be able to act upon them. May your body never be damaged by things out of your control. May you find a way to allow god’s healing into your life and your body. May you be safe and secure. May you have effective and finite treatments. May you survive what others can’t. May you know you are doing your best and that it is way better than others even try to do. May you find the solutions you seek and have the best outcomes for any situation.

Siva Hir Su