Tag Archives: medicine

Self-study

Right now I’m taking a short break to wash sheets at the clinic. My brain hurts.

I decided that even though I can’t afford med-school, especially knowing I would argue with teachers frequently, it doesn’t mean I can’t learn what I need to learn, to help Nathan.

He’s struggling again, and needs answers, and I’m determined to make it happen one way or another. So I started with texting his nurse and reading textbooks at my easy access.

At work I have a whole library of medical compendiums at my access thanks to 3 chiropractors, 2 current and one retired.  I started there with “Grey’s Anatomy”, not the stupid show. I’m now on to reading all applicable areas of “Medical Physiology”.

I’m certain I stirred up a rats’-nest with the DaVatia clinic, but the first doctor to get a clue and do their job right is spared if evidence does point to any applicable malpractice moments. Hopefully the DaVita doctor will be that saving grace, she seems nice enough.

I have plenty of books to read (see below) and if all else fails I can go down to UMKC and browse their medical library. I will find out what I need to know, one way or another. It’s too bad that I’m having to play Susan Saradon’s part in ‘Lorenzo’s Oil’. That movie was made in 1992 based on a true story from prior, yet here in 2021 there are still moments where the family cares more than the doctors.

So this is the library at work:

If I don’t find my answers there I will navigate UMKC. Somehow I will find answers. I just hope it it on time to prevent worse trouble for Nathan.

May you never have to battle for proper care. May doctors always do their best to help you. May you know that you are being cared for properly. May you have all the resources you need and find a way to make things right. May you fully understand every challenge in front of you and find solutions easily. May you always be heard and understood. Above all may you know that the divine loves and supports you in all that you do.

Om Shanti

You get what you attract.

My husband’s focus on and help of BLM, has attracted himself racist doctors.

They displayed black-man-on-medicaid syndrome.

It doesn’t matter that society has poisoned the entire race for centuries in toxic attitudes, hate campaigns, and even poisoning their water and food supplies. No, all of that hate, only led to disease that has afflicted so many of them that they are now overwhelmed with a race of diseased people. They start turning blind eyes on the details and glazing over moments when those people are trying to tell them something is wrong or symptoms that would help.

It wasn’t until I showed up in scrubs and lost it on them using language they understood. It wasn’t until the educated white woman stood up for her spouse demanding answers and solutions, that they started listening and actually started to fix it. He went from 3 months of failing adequacy to passing it in one week.

That is wrong.

I am just realizing the intensity and weight of this situation.

My husband was being shuffled off as an ignorant black-man-on-medicaid and not worth their time and effort to manage properly.

My husband, my love, my college-educated smart, intelligent husband. My husband already knows what discrimination looks like, he has had that his whole life, and he’s spent decades fighting it and doing his best to prove them otherwise.

But when your life depends on someone else’s technology, medicine, and prescription, it is the last place for discrimination.

And sadly I know he is not alone. He is not the only one going to that clinic. He is not the only one being given that treatment.

It is wrong.

But if I fight this matter I worry that I will attract more of it, both literally and figuratively.

You simply get what you focus on. My husband’s only mistake was the focus given to fighting discrimination. His focus should have been on equal rights and equal treatment. His focus should have been on total equality, fair, equal, balanced, equality for all. They wrongs are done and past, and we all need equality in every aspect of out lives. But we’ll never get to the equality ground if we keep focusing so intently on what still happens too often.

Luckily, when I had my meltdown, it was with one person that had actually cared for a family member of hers, on dialysis. I realize now the turning moment was when, I was crying talking about having to call an ambulance while I took my kids to the neighbors, and followed in the next breath with if you kept waking up at 3am to your husband in trouble you’d take less than 3 weeks to fix it. I snapped her out of black-man-on-medicaid by tugging on her emotional connection to her family.

It is sad, but true.

I don’t want rath, I don’t need punishment, I just want the system to change and stop hurting someone I love.

Medicine has hurt me, my parents, my brother, and now my husband too. Enough is enough.

I want better. I deserve better. I deserve healing for everyone in my life. I deserve a medical system that actually cares about people. First do no harm was lost long before it ever actually mattered, and no one seems to care to get it back.

May you know how to attract better into your life. May you never see the touch of discrimination because we actually truly live equally. May you understand we are all in this together. May you understand we all deserve a choice, and we all deserve treatments that actually work. May you know that above all the divine loves and supports you in all that you do.

Om Shanti

*stock photo from Pexels library

Echo,

Echo, Echo, Echo….


Last night my husband and I took advantage of a digital doctor appointment to get set-up with Medicinal Cannabis Cards. Only a couple of minutes in, the doctor stated “Insurance and Medicine don’t cover tools that heal.” I heard an echo, and Nathan laughed looking directly at me.

She referenced several tools, which I have been attempting in vain to align myself with the resources to accomplish, for myself and my family. She then proceeded to talk about the different elements of medical cannabis and which bodily systems and functions they affected to enable better functionality. She broke down the different CDB’s and terpenes and even the variations of THC and how they affected the body. I was already familiar with some of the data and information, but she gave charts and graphics that really helped narrow down our particular needs and expand our knowledge. I am very appreciative that we will soon be able to access a much more specific array of cannabis tools to help regain health.

Now if I could just get the resources together to do the I-V Oxygenation therapy and even potentially I-V Nutrient therapy for myself and my family. I don’t know how, but I know I need the universe to really cooperate with me.

See 11 years after Nathan’s original diagnosis, and 10 years since our health journey began (& 7 since I got intensely serious), we are still struggling to show success of any kind, and short resources that could potentially make the difference.

We trusted a system that was intended to be a safety net for both the patient and the medical provider. We were told by the hospital, that Nathan was sick enough that we needed to apply for disability to ensure he got care and the hospital got compensated.

We fought and fought. We gave up briefly, then fought some more.

He is finally classified as disabled, but we only got $560.00 in SSI and not a stitch of disability thus far. The lawyer claimed $150 of that and the hospital still wants us to pay them the $110,000.00 we owe them. His student loan is a mountain of paperwork away from being a headache though, not that anyone cares to help with that either. And his recent new diagnosis of Kidney Failure, a different hospital has offered to do standard dialysis, and they are helping him get set-up with medicaid.

He’s gotten more input from the Acupuncturist at the clinic than his team of medical professionals put together.

I have stated the following, many ways, in many posts, but feel the need to reiterate.

I can only speak for the American medical systems, as that is what I have dealt with for a decade.

There is no safety net if you really need it. There are just a lucky few that manage to squeak past all the hurdles and loopholes to actually get what the system promises.

&

They want you to stay sick, because if you really can’t pay, eventually the government will one way or another. See that $110,000.00 we owe to KU Med, if we never ever pay, eventually they will completely write it off, and the government will give them concessions on their taxes. They know that. But it will continue to haunt Nathan’s credit report for as many years as they can drag it out. Tell me how that is okay!!!!

Bonus: if you stay sick, they keep making money on treating your symptoms, regardless of how expensive of a process that may be. There is no incentive for them to get you well. Again, how is that okay!!!!

But I am just a disgruntled bitter person wanting my health back from a disease that they could have solved 80 years ago if they had really want to. They don’t want to solve viruses, because they make too damn much money off of them, and doctors toe the line instead of standing up for what is right and healing their patients.

In July of 1946 the World Health Organization or WHO defined health as:

Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity.

Tell me how Covid or Epstein-Barr or any other chronic virus, being allowed to run rampant, is creating health for anyone, especially our entire society. Tell me how shutting down society for a year, causing businesses to close, and people to loose homes and jobs, knowing full well that Western Medicine has no real solution for any virus, is enabling our world to find Health.

The WHO had no problem breaking their own goals of promoting health to try and “STOP” a virus, but they also have no problem enabling insurance companies and medical institutions to keep ignoring the real problems and the potential solutions right under their noses. Because the solutions make less money than the symptom treatments.

I am furious right now, and it has been directed at god more than a couple of times the last couple of weeks. This shit should have stopped 40 years ago, but just keeps being perpetuated by old greedy mostly-white bastards, and the rest of the population just lets it keep happening because they refuse to educate themselves and join forces to make it change. There will be no solution to this mess ever if that doesn’t happen. You can’t find a solution if you never try.

If you just wallow in the problem and throw your hands up in the air as “they said it’s all we have” then that is exactly what you will continue to get.

As for Nathan and I, we are doing our best to move towards our own individual solutions as quickly as possible. It does mean I have been extra extra busy and am now writing less. Please keep us in your prayers that we find all the solutions and resources we need.

May you have the solutions you need. May you know exactly what to do. May you see the falacy of things that will not help you. May you find a way to keep progressing towards better. May things generally start to get easier for you. May you know you have your health under control and stabilized as much as humanly possible. May you always have supportive medical staff. AND above all else, may you know that God loves and supports you, even when it seems otherwise.

Om Shanti